Guestbook
I was diagnosed a year ago with breast cancer. I have had a segmental breast removal (about 1/4 of my breast) followed by chemo and radiation. I was put on Tamoxifen and at first all was going well. Last couple of months I haven't been feeling well, lots of bone pain, migraines, bloating, indeigestion and so on. I've had a follow-up bone scan and I'm scheduled for a liver ultrasound this Friday. I'm a little scared but I'm hoping it's the Tamoxifen and not a recurrence of the cancer. I'm 48 years old and have 2 teenage daughters. I worry about them. I also have 3 younger sisters and one just had surgery for breast cancer. There are was no prior history of breast cancer in the family. I really like this site especially your quest book and Quilt. I got through last year with the help of the Lord and I'll get through the next as well. My prayers go to all of you who are touched by this scary disease. God Bless you! This site was a good idea for people like me.Iwould love to learn more, please e-mail me and tell me more. I did not answer url because i did not understand what it was. Squauana Claybrooks <Squack@aol.com> Jackson, TN Madison - Tuesday, April 15, 1997 at 14:25:02 (EDT) Jillian Wegrocki <wegrocki@vgernet.net> dalton, Ma u.s.a. - Monday, April 14, 1997 at 17:50:37 (EDT) I think this site is a very good idea. David <AsimK@worldnet.att.net> Ft.Lauderdale, FL - Monday, April 14, 1997 at 06:27:28 (EDT) Your WebSite is great! My mother is 75, is a 33 yr survivor of breast cancer, and a 5 yr survivor of ovarian cancer. I had a mastectomy in 1987, no lymph involvement, no radiation or chemo, and did not have reconstruction done at the time. Now I am considering prophylactic removal of the other breast and reconstruction of both. I could have a matched set again! I surfed for info and found you. I'll be back. Deanna Batty <batty@eac.cc.az.us> Pima, AZ USA - Thursday, April 10, 1997 at 17:29:36 (EDT) Had advanced breast cancer three years ago. My arms is very swollen and I am getting ready to start to use a prump. Does this really work? Melody <mmartin@kiva.net> Bloomington, In 47401 - Thursday, April 10, 1997 at 14:53:02 (EDT) I'm doing a Bioethical report for school on Breast Cancer suseptiability I am only a freshman in High school. Please send me any info you may have. thank you. Saron Kolaskey <Norask@aol.com> Lansing, MI USA - Wednesday, April 09, 1997 at 19:28:58 (EDT) I am a 18 year old daughter of a mother with breast cancer. She started with breast cancer 4 years ago at the age of 36. It came back in her neck 2 years ago. And now just 3 months ago it came back in her spine and liver. She has undergone numerous treatments and has great courage. I love her dearly, but we all know her time is limited. She is only 40 years old. Please pray for us...I am scared... Liza Livingstone <esl@icon-stl.net> St. Louis, Mo - Sunday, April 06, 1997 at 22:29:43 (EDT) Had wide excision Nov.21 1996 to remove in situ ductal cancer from right breast, minimal clear margin so 27 radiation treatments in progress. Last one April 21 96..YAHOO! I'm 41, my mum had similar diagnosis and treatment at 47 so am interested in genetic links to help two sisters and my daughters (20 and 23) work to a cancer free future. Good health to other survivors. Great page! Linda Rann <timrogue@island.net> Nanoose Bay, BC Canada - Saturday, April 05, 1997 at 18:39:01 (EST) Was told on April 3 a cancer was found in right breast. Surgeon talking about more cutting and looking at lymph nodes; pathology report states: WE WOULD ACCEPT ONLY FOLLOW-UP MAMMOGRAPHY AS TREATMENT FOR THIS MINIMAL LESION. Any experience out there you can help me with? Thanks.. <erie@fiber-net> - Saturday, April 05, 1997 at 17:39:42 (EST) Just received the call last night, my sister, age 54 has some suspicious clumps of cells found with her recent mamogram. She has to go in for a biopsy. We are all praying, please pray with us. Mary Leatzau <leat@wwnet.net> New Baltimore, MI USA - Thursday, April 03, 1997 at 04:07:44 (EST) I had DCIS diagnosed in nov 1996. A modified radical mastectomy in Jan 1997. No node involevement. I am so glad there are places for us to get info and be heard! This is a club none of us wanted to be in, but the members are truley special. Candy Hall <76256.241> fresno, ca - Thursday, April 03, 1997 at 01:10:24 (EST) Hi Stan and Carol- great to visit your site. I am the author of the pink ribbon site.- Info below__ Please visit and sign my new guestpad. Download Pink Ribbon Gif for Breast Cancer Awareness * * * * * *Add a Pink Ribbon * * * * * * * * Download pink ribbon page 
NEW SERVICE- Resource - Women's Health
A web first. Now visited by over 43 countries.
Carol Sutton launched April 18, 1996 & updated on a regular basis, last update March 8, 1997,
a site for Breast Cancer Awareness and for free download
of pink ribbon icons - gifs - jpg + instructions.
News, Women's Health, Links, Diet, Famous Women Who Have Died of Breast Cancer Section
More than just ribbons!
NEW Essay -What exactly is breast cancer? links to death statistics
NEW GUESTPAD!
* * * *
Filmed for television, for Take 3, on WTN - Women's Television Network,airing
Nationwide across Canada
Thursday -9 PM on December 19 1996,
* * * *
The only library of pink ribbon icons-take one for free.
at: Download Pink Ribbon
http://www.geocities.com/SoHo/2703/pink_rib_lib.html
Carol Sutton <blank@astral.magic.ca> Toronto, ON Canada - Tuesday, April 01, 1997 at 16:34:34 (EST) My grandmother was just diagnosed with breast cancer and I am trying to gather as much info as possible for her so that she can make some decisions. She doesn't have a computer and that is why I am doing this. I love her greatly and hope to help her find all the info she needs. We are all so scared because this is happening so fast sonya sonya vigil <lucretia@concentric.net> littleton, CO - Wednesday, March 26, 1997 at 23:30:42 (EST) connie... frightened, scared, hoping for a future! Connie Landacre <RBeach45@AOL> Royal Oak, Mi USA - Wednesday, March 26, 1997 at 21:40:18 (EST) My wife had a swallen left arm. After going through a Scann three lynf nodes were found to be cancerous. She has has a breast removed 5 years ago after going thrugh Chimo and Radiation. I am scared. Jim Geleszinski <Geles@XTDL.Com> Milford , Nh USA - Wednesday, March 26, 1997 at 21:02:48 (EST) Hi , I have just finished my radiation treatment. I still do not understand very much about this disease . They remove 11 of my limph glands and about 70% of my breast . I found out I had cancer in November 1996. I would like to here from other women who are going thew this. Theresa Evans <kevans@sar-net.com> Sarnia, Ont Canada - Monday, March 24, 1997 at 21:26:50 (EST) Hi. Just found this through a link from another page. My mom is a breast cancer survivor of two years. If anyone wants to e-mail me, feel free. Trish Trisha Hunter <thunter@toolcity.net> Saegertown, pa USA - Monday, March 24, 1997 at 07:32:50 (EST) Just discovered this great resource and will probably be returning to it frequently. I had a lumpectomy in August '97 and radiation following it. My prognosis is excellent, but I am not happy with Tamoxifen side effects, i.e., hot flashes much too frequently. My oncologist prescribed Ergotamine/Belladonna/PB/SA and then Megace to counter those effects. Neither worked and I had a terrible skin reaction to the Megace. Has anyone found something that works? Bunny Alexander <alexp@saclink.csus.edu> Sacramento, CA USA - Sunday, March 23, 1997 at 16:00:21 (EST) This was an excellent area once I found it. Prior to this I truly had not found a great deal that I was looking for. I have a good friend newly diagnosed and I'm looking for specific things that apply to her. thanks mary herbold <gmae@aol.com> knoxville, tn usa - Saturday, March 22, 1997 at 23:34:09 (EST) Karen Daly <kbdaly@ct2.nai.net> Naugatuck, CT - Wednesday, March 19, 1997 at 19:56:28 (EST) We think that this Web page is great, especially for young women like us who should learn more about breast cancer. Yudelca Ovalles & Milca Tineo Providence, RI - Wednesday, March 19, 1997 at 10:13:43 (EST) thanks for lots of interesting information haakon fossgard <none> stockholm, sveden - Monday, March 17, 1997 at 05:38:11 (EST) On March 5 I was watching a program on tv saying that self examination was of very little use. I began examining my breasts which I very rarely do. I felt a lump, very definit, at least 1 inch. The next day I went to the doctor, had the biopsy and was confirmed with cancer. I had the operation on March 11. I understand it was successful and did not spread to the lymph. I understand I have to have radiation. I am really starting to get scared. I probably kept thinking, no it won't be cancer. This is a great site. Just hearing other stories related to me. bev wills <syms@pathcom.com> mississauga, ont canada - Sunday, March 16, 1997 at 17:38:00 (EST) What a great website!! I have a very close friend who is undergoing chemotherapy for breast cancer and I was wondering if anyone out there has found any way to aleviate the painful mouth sores that accompany this treatment. I would appreciate any information that anyone could provide - as, my friend does not have internet access available to her. Cindy Ellsworth <c.ellsworth@aaiate.com> Vernon Hills, IL USA - Saturday, March 15, 1997 at 17:29:51 (EST) I am 26 years old and I just had a fibroadenoma removed from my left breast and a 5 cm cystosarcoma phyllodes tumor removed from my right breast. My doctor thought it was another fibroadenoma but was wrong, so I have to go back and get more breast tissue removed from around the area the tumor was taken out. Thank goodness it was benign. She said there is a possibility of another one coming back in the future. I hope it doesn't. I would like any information on cystosarcoma phyllodes that anyone can send me. Thank you. Please, all you wonderful women out there take care of yourselves. Peace & Love!! Carey Cowan <careybear@hotmail.com> Lansing, MI USA - Thursday, March 13, 1997 at 16:51:33 (EST) Very good idea your Web-adress Dr.med. Vincenzo Bluni <Vincent151@aol.com> W-Germany - Wednesday, March 12, 1997 at 19:55:43 (EST) I am a massage therapy student trying to locate a post mastectomy patient for a case study. I am interested in breast cancer particularily post mastectomy due to the fact that my grandmother had both breasts removed twelve years ago, she had a modified radical mastectomy and is still doing fine. Massage therapy can be very beneficial especially if any muscle fibers of the chest wall have been affected. If you are interested or have any questions please contact me. Nadine Sullivan <david_kazakoff@mindlink.bc.ca> Vancouver, BC Canada - Wednesday, March 12, 1997 at 13:05:21 (EST) Just finished high dose chemo with stem cell support for metastatic breast cancer. Looks successful! New to internet, this looks great! Susie Henderson <dehndrsn@clover.net> Steubenville, OH - Tuesday, March 11, 1997 at 21:12:46 (EST) Some of the people signing your guestbook might be interested in signing onto the Breast Cancer List: LISTSERVER@MORGAN.UCS.MUN.CA There are so many messages you can hardly keep up on a daily basis, but there's always someone who can tell you their similar experience and often there is very good advice. Keep up your good work, Carol and Stan Merle Bodycomb <bodycomb@erols.com> Edgewater, MD - Tuesday, March 11, 1997 at 20:47:22 (EST) Cindy Dorr <jeand@pionet.net> Homer, NE USA - Tuesday, March 11, 1997 at 00:28:25 (EST) Im 17 and scared about breast cancer.I Don't have it, but Im a weight lifter and I heard that I could have the chance of getting it. Is that true?? Jessica Hayward <Jessvbt.ida.net> Idaho falls, ID U.S.A - Monday, March 10, 1997 at 21:42:47 (EST) I am 41, had lumpectomy, radiation in Oct.'91 for .6cm tumor & negative lymph nodes. (did not have clean margins) Took tamoxifen for 2.5 years. Found new lump in same breast, Jan. 96. Underwent mastectomy and TRAM reconstruction, and chemotherapy. The TRAM reconstruction was not as bad as all the books stated. I was able to leave the hospital in 3 days, and the pain was minimal. The zofran (anti-nausea) medication given prior to each Chemo treatment helped to keep me from becoming sick. I am now recuperating from the Nipple revision surgery, and will be going thru radiation again (targeting the regional lymph nodes around the sternum). Results from the mastectomy showed cancer cells in the old site, a new tumor about 1.5 inches from the old site, and 3 out of 4 quadrants with cancer in the ducts. Also, there was evidence of lymphatic invasion. Would like to hear from others who have had local recurrences. I found the local American Cancer Society in my county rather unresponsive. Jeri Steele <msteele@bellsouth.net> Atlanta, GA USA - Sunday, March 09, 1997 at 22:46:32 (EST) Have had a biopsy without clear margins. I will be having a mastectomy on the 11th with immediate reconstruction. I hope I do not have any nodes involved, I will be having chemo in any event. Guest book is a good idea. We are all in this fignt together! Good luck to all!!! Pat Pickford <ppickford@aol.com> San Carlos, CA USA - Thursday, March 06, 1997 at 15:46:57 (EST) One sister died of breast Ca 6/96 at age 39. Remaining sister scheduled for lumpectomy 3/7/97, age 43. Both sisters' lumps discovered during or right after a pregnancy. Looking for any info I can provide for remaining sister, mother and self. Thanks. Lori Bristle <tbristle@dnet.net> - Tuesday, March 04, 1997 at 22:56:15 (EST) I have had a suspicious mammogram and now they will do an ultrasound. My sister had estrogen fed breast cancer 4 years ago. I do take estrogen now, but I am considering stopping. Any suggestions for a diet to help with the symptoms of menopause? Or to take the estrogen naturally? Thanks. Nancy A. Wilson <nawilson@wichita.infi.net> Wichita, KS USA - Tuesday, March 04, 1997 at 21:51:34 (EST) I am looking for any information on Pagets Disease of the breast. I believe it is a rare form of Breast Cancer. Please e-mail me with any information you have and wish to pass on. Thanks. Jinny Barton <jinnyb@1x.netcom.com> Fullerton, CA USA - Tuesday, March 04, 1997 at 01:27:59 (EST) Two wks ago I was dx with intraductal comedo carcinoma in the lft breast. Went for 2nd opinion @ Stanford Med Ctr. Now having surgical biopsy on rt breast prior to mastectomy. Have a strong family hx of breast & ovarian cancer. I'm 49 yrs old. Want to hear from people that have experience with intraductal CA. If the rt breast shows no signs of CA, I still want to have a bilateral mastectomy. Anyone else with that experience? I'm also interested in hearing about reconstructive surgery using the tram flap procedure. My surgery is scheduled for 3/16, so quick responses will be much appreciated! Thanks Sandy LaBadie <blsl@ix.netcom.com> Cupertino, CA USA - Monday, March 03, 1997 at 21:04:05 (EST) Evelyn Munro <emunro@ican.net> Etobicoke, ON Canada - Monday, March 03, 1997 at 20:13:13 (EST) I have not been diagnosed with cancer, but I am having a discharge from my right nipple. I know its one sign of cancer. I a little scared. I recently had a mammogram and everything was fine, but the nipple is still draining. Has anyone ever had this problem. I have been to two doctors, they both said its nothing to worry about. Should I seek another doctor? Thanks for responding Ada Faulk-Thomas <amthomas@lft.k12.la.us> Lafayette, LA USA - Monday, March 03, 1997 at 14:09:09 (EST) ...this is quite a new journey...i'm hungry for ways to fight these little cell brats who sneakily disguise themselves in order to invade us....we must be smart and gather our mind and body forces to stop and kill this cancer. I am newly diagnosed and wishing to communicate with anyone and everyone who wishes to communicate with me. Together we will change things so we may continue to live our lives to fullfillment and happiness. Please write to me. Robin Hornstein <mdgo@musica.mcgill.ca> Montreal, Quebec Canada - Friday, February 28, 1997 at 10:54:38 (EST) I'm 46 yrs old. Sept/94 I had bi-lateral mastectomies. No node involvement. I had no lump, just calcifications showed up on routine mammogram. After two different biopsies and no clear margins I had the bi-lateral. I had reconstruction at the same time as bi-lateral . I am very pleased with the results. I educated myself reading everything I could read on breast cancer. Sure wish I new about your web page then. Please feel free to contact me. A grateful survivor! Susan Sandner <Febco@sunshinecable.com> Christina Lake , BC Canada - Friday, February 28, 1997 at 02:25:49 (EST) - Thursday, February 27, 1997 at 21:59:05 (EST) New breast cancer patient. Have had lump removal with 1.5cc tumor and 1/2" clear margin. I also had a mole that turned out to be malignant melanoma on the left supra pubic area. I have have wide excision for the melanoma but have chosen to go alternative therapy for the breast cancer.Has any one out there any experience with nutritional and herbal treatment including Caisse's Tea or Essiac. I have been searching and compiling information about allopathic treatment and the discouraging answers that one treatment above another is really no different. What say you? Barbra Glendenning <barbg@cyberstreet.com> Englewood , Fl USA - Thursday, February 27, 1997 at 21:58:15 (EST) Scott Leise <Leise00@aol.com> omaha, NE United States - Thursday, February 27, 1997 at 19:28:47 (EST) Scott Leise <Leise00@aol.com> omaha, NE United States - Thursday, February 27, 1997 at 19:26:39 (EST) very helpful Noeleen Farrell <riversidefit@tnt.ie> Dublin, Ireland - Thursday, February 27, 1997 at 16:07:21 (EST) Looking for any info on all the tests, they send you for before you even start your treatments, bone scans, mri's, muga scans, position emission tomography. ANY info would be appreciated! Good Luck to All. Angela <TNTMOM96 @aol> NY USA - Wednesday, February 26, 1997 at 21:47:43 (EST) My 64 year old mom was recently diagnosed with breast cancer. She had a lumpectomey and 6 positive lymph nodes. She is on an aggressive chemotherapy regime. This regime was discovered by an italian doctor named Bonnadonna (sp?. Does anyone know anything about this treatment plan? Lisa <LZanch@aol.com> Philadelphia, PPA USA - Monday, February 24, 1997 at 21:58:55 (EST) My 67 year old mother has been diagnosed with breast cancer and underwent a mastectomy of her right breast. She has 10 positive lymph nodes. Her oncologists are recommending high dose stem cell chemotherapy....Any experiences or information on this would be greatly appreciated. Thanks Laurie Gilden <KGLK61A@Prodigy.Com> San Diego, CA USA - Saturday, February 22, 1997 at 18:00:48 (EST) I was diagnosed with breast cancer in June of this year. I have have 9 chemo treatments, three more to go. Then we start radiation..... then the reconstructive work. What then???? Suzie Gaut <xvue81a> Kennesaw, GA Cobb - Friday, February 21, 1997 at 22:53:43 (EST) Ann Marie Johnson Mobile, AL - Thursday, February 20, 1997 at 13:44:37 (EST) My 27-year-old sister has just been diagnosed with breast cancer (invasive) in both breasts..... Radical Mastectomy is scheduled and numerous tests are being completed (Bronchectomy, Bone Scan, Blood Tests, etc.). Just trying to learn everything I can regarding this disease.... S. Albrecht <Scoot8913@aol.com> Milwaukee, WI USA - Thursday, February 20, 1997 at 02:21:22 (EST) I am a 3-time breast cancer patient and am always looking out for information on breast cancer. We are having a public forum, entitled "Getting the Best Breast Cancer Care" on May 2, 1997 at 7 p.m. in the Grand Ballroom of the J.W. Marriott Hotel, 5150 Westheimer Road in Houston,Tx if anyone out there would like to attend. gerry gomez <gerry.gomez@polaris.dhs.state.tx.us> houston, tx usa - Wednesday, February 19, 1997 at 17:46:09 (EST) I very much like your poster for January. I am looking forward to see one every month. Would be great if you could come up with an interesting one for The First WORLD CONFERENCE ON BREAST CANCER, which will take place in Kingston, Ont. Canada, July 13 -17, 1997. Heidi Geraets <geraets@uottawa.ca > - Tuesday, February 18, 1997 at 19:42:53 (EST) Michelle Mendenhall <mim401s@nic.smsu.com> Nixa, MO USA - Tuesday, February 18, 1997 at 14:34:20 (EST) This is such a great find. I'm glad that there are people working this hard to help stop this disease. If anyone is aware of any great projects that I could help with in or near Chicago, please let me know. Robyn Epstein <repstein@shrike.depaul.edu> Chicago, IL US - Monday, February 17, 1997 at 19:03:48 (EST) Good idea to have a guest book, how about a news page? I would be really grateful if anyone has any good references for breast cancer and the environment. Please e-mail them to me. Thanks,they may help me for my MA degree. Sue xxx sue Wheatley <sw117@bton.ac.uk> Brighton, UK - Thursday, February 13, 1997 at 08:34:47 (EST) Just found your web site. I have been searching for information in Canada. Maxine Maksymiw <maksymiw@norlink.net> Thunder Bay, ON Canada - Saturday, February 08, 1997 at 17:36:20 (EST) sally Jones huddersfield, UK - Friday, February 07, 1997 at 12:25:19 (EST) Janet Wolf <DEM25@aol.comat internet> Rochester, NY USA - Thursday, February 06, 1997 at 15:54:20 (EST) Thank you very much for providing your web site, particularly the the link to oncolink. I was able to find some info on stem cell therapy. A friend of mine is a candidate for it. Joan Luiken <mt209211@linden.msvu.ca> Halifax, NNnsnsnsNS Canada - Thursday, February 06, 1997 at 13:53:20 (EST) Sharon E. Waggoner,M.D. - Wednesday, February 05, 1997 at 17:11:39 (EST) Hoping to find some good info here. Nancy Hall <EMT_Bob@msn.com> Los Alamos, NM USA - Tuesday, February 04, 1997 at 23:28:34 (EST) n.b fremont, ne bosnia - Tuesday, February 04, 1997 at 12:42:04 (EST) Pretty neat! Milton Kimmel <milton@intranet.ca> ottawa, On canada - Monday, February 03, 1997 at 20:38:36 (EST) Congratulations! I just discovered your guestbook. What a great idea. Regarding healthy eating, you might want to look into The Hay System which recommends the right combination of foods. For example: Starches and sugars should not be eaten with proteins and acid fruits at the same meal, etc. The book you could consult on this is called: Food Combining For Health by Doris Grant and Jean Joice. Heidi Geraets <geraets@uottawa.ca> Ottawa, On Canada - Sunday, February 02, 1997 at 18:38:23 (EST) Wow! This is pretty neat. About the food page, have you seen anything linking eating meat and drinking milk to increased incidence of hypercalciuria? And increased osteoporosis in milk-drinkers? I have seen a lot lately. Q. Do you advocate vegetarianism?? I really like your page additions and this guestbook. Why do you have a page between your index page and the actual guestbook? Just curious! Take care, Love El Elliott Kimmel <ekimmel@mars.execulink.com> London, On Canada - Sunday, February 02, 1997 at 14:04:00 (EST) |